World Autoimmune Arthritis Day
The nonprofits who participate in WAAD are the heart and soul of this event, as they agree to supply event coordinators with links to resources so that patients and supporters can easily locate information to help manage life with autoimmune/auto-inflammatory arthritis and related diseases. there is no other event in the world where you can find so many resources under one 'roof', so nonprofits, thank you for your contribution!
Your favorite Nonprofit Race Teamswill started their engines at 6am ET/USA on May 19th and raced around 6 "Tracks" until the checkered flag waves at 2pm ET/USA on May 22nd. Nonprofit Race Teams earned mileage points every time supporters registered to support their team and during the event whenever their resources or WAAD16 posts were "liked" or "shared" on social media. At the end of WAAD16, the top 5 Nonprofit Race Teams who earned the most mileage points were:
Grand Champions: U.S. Pain Foundation
2nd Place: National Rheumatoid Arthritis Society
3rd Place: International Pain Foundation
4th Place: CreakyJoints
5th Place: International Foundation for Autoimmune Arthritis
You can read a complete overview of the race by downloading the WAAD16 Overview.
Kathleen Arntsen, patient advocate and CEO and President of Lupus and Allied Disease Association (LADA) has dedicated her life to improving healthcare, promoting patient-centric research and empowering individuals impacted by autoimmune diseases and other conditions of unmet need. Kathleen was struck with several autoimmune diseases in the prime of her life, forcing her to give up many hopes and dreams. But after winning disability she became an advocate to help fill a void left by disease. This has brought her life full circle, as she spends much time at various state capitals to influence public policy in an attempt to make a positive difference in the lives of others.
As the “main event” continued on the Tracks from day to day, WAAD16 offered participants a number of “Detours,” or live sessions on a variety of topics. During these sessions, participants were given the opportunity to hear from patient leaders in the autoimmune/auto-inflammatory arthritis community - to discuss the issues that affect us, ask questions, share ideas, and more.
Featured Chats included:
Summaries of the chats can be read by downloading the WAAD16 Overview.
Parker Lentini is an incredibly strong and resilient 16 year old who has systemic-onset juvenile arthritis with overlap syndrome including: myositis, psoriatic features, vasculitis, Raynaud’s, ankylosing spondylitis and hypogammaglobulinemia. While he has literally fought for his life these past eight years, he has never given up hope for himself and all the other children with juvenile arthritis. Parker believes “you’re never fully dressed without a smile” and “with hope anything is possible”.
The 4-day WAAD event was broken down to six “Tracks,” or themed time slots. Nonprofit Race Teams and Resource Kiosk contributors collectively provided over 300 resource links under the topics of Disease Education, Lifestyle Guidance, Advocacy, Support & Communication, Disease Management, and Research respectively.
You can access all 300+ links by downloading the WAAD16 Overview.
WAAD16 engaged over 100,000 people over 4 days, and reached over 60 countries There were over 30 supporting organizations and Official Nonprofit Race Teams signed up to compete for the title of WAAD16 Champion, all while sharing over 300 resources in the following categories: Disease Management, Disease Education, Lifestyle Management (including diet and exercise), Advocacy, Support and Communication, and Research. The event was compiled into this downloadable overview, which includes ALL resource links from WAAD16!
Download over 300 Resources from WAAD16:
World Autoimmune Arthritis Day is an event created and run by patients (IFAA) for patients and their supporters so they can raise awareness, chat with others like them from around the world and find resources that are submitted by the participating Nonprofit Race Teams. As patient organizers, we understand the importance of self-advocacy and doing our part to make a difference for others like us. This year we honor two patients who have demonstrated that in the midst of their journeys with autoimmune/auto-inflammatory diseases they still do all they can to push forward and advocate for others. They are true inspirations! Meet our 2016 Recipients:
Participate in WAAD ONLINE
World Autoimmune Arthritis Day is recognized on the following calendars internationally:
American Institute for Preventative Medicine
Australian Government Department of Health & Aging
Better Health Channel
Care Aware Calendar
Chases Calendar of Events 2016
Deblin Design Cause Awareness Calendar
Department of Health-Australia
Food and Health Communications
Health Awareness Project
National Health Information Center
National Wellness Institute
Power of Pain Foundation
Society for Healthcare Strategy & Market Development
Third Sector Awareness Dates
Time and Date
Wellness Council of America
Work Smart, Live Smart
WAAD16 Healthcare Calendar Listings
World Autoimmune Arthritis Day was established by theInternational Foundation for Autoimmune Arthritis (IFAA) in 2012, officially falling on May 20th, and is currently listed on over 2 dozen health calendars internationally. The event unites dozens of nonprofits, advocates, and experts from around the world to provide educational and awareness information to patients, their supporters, and the general public.
Until 2015, WAAD was run in the form of an online convention, with virtual booths, live presentations , and various activities for both patients and supporters. However, the new platform is that of an online, interactive ‘raceway', headquartered on this website and the WAAD Facebook and Twitter pages, but sends participants to links and pages to learn more about valuable resources. It also boasts awareness posters to share, live Call to Action Crowd Rally activities, and live chat sessions.
There is no other program in the world focused on Autoimmune and/or Auto-inflammatory Arthritis and associated diseases that is as large and has the potential global reach as World Autoimmune Arthritis Day. This event provides patients from anywhere in the world, regardless of physical limitations, the ability to find 100’s of resources for disease management, as well as the opportunity to interact with other community leaders just by logging into the internet.